We fell down the rabbit hole and then carefully, slowly, clawed our way back out.
And then my baby got sick again, and landed back in hospital.
I am stuck on that point. My BABY is SICK and no one knows what is wrong with her. No one can fix her yet and everyone just wants to poke more needle holes into her tiny precious skin. This child of mine who lived under my heart is sick and I cannot magically fix it.
She’s having seizures – we know that much. Tiny seizures that come again and again and again and exhaust her body and brain. Tiny seizures that make her face and eyes twitch and the muscles in her back jump like she’s being nibbled by ants. And yet, no tests show anything, denying the truth of what we’re witnessing over and over.
I spent three days sleeping on a recliner next to her cot in Paediatrics and then we were sent home on weekend leave, with no solid plan in place. The tests are the be all and end all and with negative results, no one knows what is happening and why.
My mama instinct tells me that this is WRONG, that there is something WRONG and why is no one fixing my BABY?
I can’t breathe, because my baby is sick and no one is fixing her, because no one can work out what is happening.
She’s asleep now. She’s always asleep now, exhausted by her muscles twitching when they ought to not be. But she’s asleep now and I type this and watch her and wonder what is happening here. How do I distract myself from worrying about brain damage and developmental delays and the fact that my baby is sick?
There is no distracting from this.
Not now.
Not yet.
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